Coverart for item
The Resource Hispanic mothers' narratives : experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis, by Linda Tirabassi-Mathis

Hispanic mothers' narratives : experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis, by Linda Tirabassi-Mathis

Label
Hispanic mothers' narratives : experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis
Title
Hispanic mothers' narratives
Title remainder
experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis
Statement of responsibility
by Linda Tirabassi-Mathis
Creator
Contributor
Author
Subject
Genre
Language
eng
Summary
The Hispanic population is the fastest growing minority in the United States and is also a minority in the cystic fibrosis (CF) community. Therefore, an increase in CF in the U.S. might be anticipated. This study explored stories of Hispanic mothers perspectives of parenting their child with CF, health beliefs, and health care experiences. The study interviewed 10 mothers of which half were English speaking. Narrative structural and thematic analyses were applied through a critical feminist lens. The major themes that emerged were mothering, growing and growth, mother talk, and connected; all informed by Ruddicks (1995) framework on maternal thinking. Additional major themes were life disrupted and being here. Findings were consistent with existing literature of the dominant Euro-American culture of being a mother of a child with CF. Health beliefs specific to CF care were aligned with prescribed medical treatments. Language emerged as a primary barrier for Spanish-speaking mothers. Mothers acknowledged an existing lack of awareness of CF in the Hispanic community and as underrepresented within the larger CF community. They expressed a desire to see a shift of stereotyped Caucasian images of CF to represent Hispanic people to promote greater awareness in the Hispanic communities and with health care providers
Member of
Cataloging source
CDU
http://library.link/vocab/creatorName
Tirabassi-Mathis, Linda
Degree
(Ph.D.)
Dissertation note
Dissertation
Dissertation year
2015
Granting institution
University of San Diego
Illustrations
illustrations
Index
no index present
LC call number
RJ456.C9
LC item number
T57 2015eb
Literary form
non fiction
Nature of contents
  • bibliography
  • theses
http://library.link/vocab/relatedWorkOrContributorName
University of San Diego
Series statement
Dissertation series University of San Diego
Series volume
2015
http://library.link/vocab/subjectName
  • Cystic fibrosis in children
  • Hispanic American mothers
  • Hispanic American children
Label
Hispanic mothers' narratives : experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis, by Linda Tirabassi-Mathis
Instantiates
Publication
Contributor
Note
Dissertation committee: Jane Georges, Chair; Susan Instone; Ann M. Mayo -- title page
Bibliography note
Includes bibliographical references (pages 142-168)
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Control code
956547520
http://bibfra.me/vocab/relation/dissertationadvisor
ncbyiMdFGp4
Extent
1 online resource (xiv, 199 pages)
File format
one file format
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other physical details
illustrations
Specific material designation
remote
System control number
(OCoLC)956547520
Label
Hispanic mothers' narratives : experiences of parenting a child with cystic fibrosis, health beliefs, and health care experiences related to cystic fibrosis, by Linda Tirabassi-Mathis
Publication
Contributor
Note
Dissertation committee: Jane Georges, Chair; Susan Instone; Ann M. Mayo -- title page
Bibliography note
Includes bibliographical references (pages 142-168)
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Control code
956547520
http://bibfra.me/vocab/relation/dissertationadvisor
ncbyiMdFGp4
Extent
1 online resource (xiv, 199 pages)
File format
one file format
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other physical details
illustrations
Specific material designation
remote
System control number
(OCoLC)956547520

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