The Resource In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
Resource Information
The item In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of San Diego Libraries.This item is available to borrow from 1 library branch.
Resource Information
The item In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of San Diego Libraries.
This item is available to borrow from 1 library branch.
- Summary
- The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness - from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill
- Language
- eng
- Extent
- 1 online resource (xvii, 302 pages)
- Contents
-
- The Campbells
- The Reynoldses
- The Chases
- The Woodwards
- The Fosters
- The Baileys
- Containing the Intrusion
- Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders
- Issues and Strategies
- Strategies, Normalcy, and Control
- The Impact of Cystic Fibrosis on Well Siblings
- Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition
- Well Siblings' Views
- Formation of Well Siblings' Views
- Well Siblings' Relationships with Parents and Ill Siblings
- Resources and Communication
- The Well Siblings' Position in the Family
- Afterword: Meeting the Needs of the Well Sibling
- General Guide lines for Clinical Intervention
- Communication in the Family: The Case for "Shuttle Diplomacy."
- Approaches to the Study of Well Siblings
- An Ethnographic Approach
- A Framework for Analysis
- Portraits in Waiting: Nine Families
- The Daleys
- The Shermans
- The Farringtons
- Isbn
- 9780691214702
- Label
- In the shadow of illness : parents and siblings of the chronically ill child
- Title
- In the shadow of illness
- Title remainder
- parents and siblings of the chronically ill child
- Statement of responsibility
- by Myra Bluebond-Langner
- Subject
-
- Bewältigung
- Brothers and sisters -- Death | Psychological aspects
- Brothers and sisters -- Death | Psychological aspects -- Case studies
- Case studies
- Case studies
- Chronische Krankheit
- Chronische ziekten
- Cystic Fibrosis -- psychology
- Cystic fibrosis -- Psychological aspects
- Cystic fibrosis -- Psychological aspects -- Case studies
- Death -- Psychological aspects
- Death -- Psychological aspects -- Case studies
- Electronic books
- Enfants malades en phase terminale -- Relations familiales -- Études de cas
- Familienangehöriger
- Frères et sœurs -- Mort | Aspect psychologique | Cas, Études de
- Gezin
- Kind
- 77.21 humanistic psychology
- MEDICAL -- Pediatrics
- Medische psychologie
- Mort -- Aspect psychologique | Cas, Études de
- Mucoviscidose -- Aspect psychologique | Cas, Études de
- Parent-Child Relations
- Parents d'enfants malades en phase terminale -- Cas, Études de
- Parents of terminally ill children
- Parents of terminally ill children -- Case studies
- Personal Narrative
- Psychische Belastung
- Sibling Relations
- Terminally ill children -- Family relationship -- Case studies
- Terminally ill children -- Family relationships
- Terminally ill children -- Family relationships -- Case studies
- Kinderen
- Language
- eng
- Summary
- The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness - from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill
- Cataloging source
- JSTOR
- http://library.link/vocab/creatorDate
- 1948-
- http://library.link/vocab/creatorName
- Bluebond-Langner, Myra
- Index
- index present
- Literary form
- non fiction
- Nature of contents
-
- dictionaries
- bibliography
- http://library.link/vocab/subjectName
-
- Death
- Parents of terminally ill children
- Brothers and sisters
- Terminally ill children
- Cystic fibrosis
- Parents of terminally ill children
- Cystic Fibrosis
- Parent-Child Relations
- Sibling Relations
- Terminally ill children
- Mort
- Parents d'enfants malades en phase terminale
- Frères et sœurs
- Enfants malades en phase terminale
- Mucoviscidose
- 77.21 humanistic psychology
- MEDICAL
- Brothers and sisters
- Cystic fibrosis
- Death
- Parents of terminally ill children
- Terminally ill children
- Kind
- Chronische Krankheit
- Familienangehöriger
- Psychische Belastung
- Bewältigung
- Chronische ziekten
- Kinderen
- Gezin
- Medische psychologie
- Label
- In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
- Antecedent source
- unknown
- Bibliography note
- Includes bibliographical references (pages 275-294) and index
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Color
- multicolored
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
-
- The Campbells
- The Reynoldses
- The Chases
- The Woodwards
- The Fosters
- The Baileys
- Containing the Intrusion
- Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders
- Issues and Strategies
- Strategies, Normalcy, and Control
- The Impact of Cystic Fibrosis on Well Siblings
- Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition
- Well Siblings' Views
- Formation of Well Siblings' Views
- Well Siblings' Relationships with Parents and Ill Siblings
- Resources and Communication
- The Well Siblings' Position in the Family
- Afterword: Meeting the Needs of the Well Sibling
- General Guide lines for Clinical Intervention
- Communication in the Family: The Case for "Shuttle Diplomacy."
- Approaches to the Study of Well Siblings
- An Ethnographic Approach
- A Framework for Analysis
- Portraits in Waiting: Nine Families
- The Daleys
- The Shermans
- The Farringtons
- Control code
- on1162817285
- Dimensions
- unknown
- Extent
- 1 online resource (xvii, 302 pages)
- File format
- unknown
- Form of item
- online
- Isbn
- 9780691214702
- Level of compression
- unknown
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Note
- JSTOR
- http://library.link/vocab/ext/overdrive/overdriveId
- 22573/ctv10wz5f1
- Quality assurance targets
- not applicable
- Reformatting quality
- unknown
- Sound
- unknown sound
- Specific material designation
- remote
- System control number
- (OCoLC)1162817285
- Label
- In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
- Antecedent source
- unknown
- Bibliography note
- Includes bibliographical references (pages 275-294) and index
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Color
- multicolored
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
-
- The Campbells
- The Reynoldses
- The Chases
- The Woodwards
- The Fosters
- The Baileys
- Containing the Intrusion
- Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders
- Issues and Strategies
- Strategies, Normalcy, and Control
- The Impact of Cystic Fibrosis on Well Siblings
- Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition
- Well Siblings' Views
- Formation of Well Siblings' Views
- Well Siblings' Relationships with Parents and Ill Siblings
- Resources and Communication
- The Well Siblings' Position in the Family
- Afterword: Meeting the Needs of the Well Sibling
- General Guide lines for Clinical Intervention
- Communication in the Family: The Case for "Shuttle Diplomacy."
- Approaches to the Study of Well Siblings
- An Ethnographic Approach
- A Framework for Analysis
- Portraits in Waiting: Nine Families
- The Daleys
- The Shermans
- The Farringtons
- Control code
- on1162817285
- Dimensions
- unknown
- Extent
- 1 online resource (xvii, 302 pages)
- File format
- unknown
- Form of item
- online
- Isbn
- 9780691214702
- Level of compression
- unknown
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Note
- JSTOR
- http://library.link/vocab/ext/overdrive/overdriveId
- 22573/ctv10wz5f1
- Quality assurance targets
- not applicable
- Reformatting quality
- unknown
- Sound
- unknown sound
- Specific material designation
- remote
- System control number
- (OCoLC)1162817285
Subject
- Bewältigung
- Brothers and sisters -- Death | Psychological aspects
- Brothers and sisters -- Death | Psychological aspects -- Case studies
- Case studies
- Case studies
- Chronische Krankheit
- Chronische ziekten
- Cystic Fibrosis -- psychology
- Cystic fibrosis -- Psychological aspects
- Cystic fibrosis -- Psychological aspects -- Case studies
- Death -- Psychological aspects
- Death -- Psychological aspects -- Case studies
- Electronic books
- Enfants malades en phase terminale -- Relations familiales -- Études de cas
- Familienangehöriger
- Frères et sœurs -- Mort | Aspect psychologique | Cas, Études de
- Gezin
- Kind
- 77.21 humanistic psychology
- MEDICAL -- Pediatrics
- Medische psychologie
- Mort -- Aspect psychologique | Cas, Études de
- Mucoviscidose -- Aspect psychologique | Cas, Études de
- Parent-Child Relations
- Parents d'enfants malades en phase terminale -- Cas, Études de
- Parents of terminally ill children
- Parents of terminally ill children -- Case studies
- Personal Narrative
- Psychische Belastung
- Sibling Relations
- Terminally ill children -- Family relationship -- Case studies
- Terminally ill children -- Family relationships
- Terminally ill children -- Family relationships -- Case studies
- Kinderen
Genre
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<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.sandiego.edu/portal/In-the-shadow-of-illness--parents-and-siblings/hzannKbfU7k/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.sandiego.edu/portal/In-the-shadow-of-illness--parents-and-siblings/hzannKbfU7k/">In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.sandiego.edu/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.sandiego.edu/">University of San Diego Libraries</a></span></span></span></span></div>
