Coverart for item
The Resource In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner

In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner

Label
In the shadow of illness : parents and siblings of the chronically ill child
Title
In the shadow of illness
Title remainder
parents and siblings of the chronically ill child
Statement of responsibility
by Myra Bluebond-Langner
Creator
Subject
Genre
Language
eng
Summary
The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness - from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill
Cataloging source
JSTOR
http://library.link/vocab/creatorDate
1948-
http://library.link/vocab/creatorName
Bluebond-Langner, Myra
Index
index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
http://library.link/vocab/subjectName
  • Death
  • Parents of terminally ill children
  • Brothers and sisters
  • Terminally ill children
  • Cystic fibrosis
  • Parents of terminally ill children
  • Cystic Fibrosis
  • Parent-Child Relations
  • Sibling Relations
  • Terminally ill children
  • Mort
  • Parents d'enfants malades en phase terminale
  • Frères et sœurs
  • Enfants malades en phase terminale
  • Mucoviscidose
  • 77.21 humanistic psychology
  • MEDICAL
  • Brothers and sisters
  • Cystic fibrosis
  • Death
  • Parents of terminally ill children
  • Terminally ill children
  • Kind
  • Chronische Krankheit
  • Familienangehöriger
  • Psychische Belastung
  • Bewältigung
  • Chronische ziekten
  • Kinderen
  • Gezin
  • Medische psychologie
Label
In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references (pages 275-294) and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • The Campbells
  • The Reynoldses
  • The Chases
  • The Woodwards
  • The Fosters
  • The Baileys
  • Containing the Intrusion
  • Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders
  • Issues and Strategies
  • Strategies, Normalcy, and Control
  • The Impact of Cystic Fibrosis on Well Siblings
  • Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition
  • Well Siblings' Views
  • Formation of Well Siblings' Views
  • Well Siblings' Relationships with Parents and Ill Siblings
  • Resources and Communication
  • The Well Siblings' Position in the Family
  • Afterword: Meeting the Needs of the Well Sibling
  • General Guide lines for Clinical Intervention
  • Communication in the Family: The Case for "Shuttle Diplomacy."
  • Approaches to the Study of Well Siblings
  • An Ethnographic Approach
  • A Framework for Analysis
  • Portraits in Waiting: Nine Families
  • The Daleys
  • The Shermans
  • The Farringtons
Control code
on1162817285
Dimensions
unknown
Extent
1 online resource (xvii, 302 pages)
File format
unknown
Form of item
online
Isbn
9780691214702
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
22573/ctv10wz5f1
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)1162817285
Label
In the shadow of illness : parents and siblings of the chronically ill child, by Myra Bluebond-Langner
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references (pages 275-294) and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • The Campbells
  • The Reynoldses
  • The Chases
  • The Woodwards
  • The Fosters
  • The Baileys
  • Containing the Intrusion
  • Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders
  • Issues and Strategies
  • Strategies, Normalcy, and Control
  • The Impact of Cystic Fibrosis on Well Siblings
  • Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition
  • Well Siblings' Views
  • Formation of Well Siblings' Views
  • Well Siblings' Relationships with Parents and Ill Siblings
  • Resources and Communication
  • The Well Siblings' Position in the Family
  • Afterword: Meeting the Needs of the Well Sibling
  • General Guide lines for Clinical Intervention
  • Communication in the Family: The Case for "Shuttle Diplomacy."
  • Approaches to the Study of Well Siblings
  • An Ethnographic Approach
  • A Framework for Analysis
  • Portraits in Waiting: Nine Families
  • The Daleys
  • The Shermans
  • The Farringtons
Control code
on1162817285
Dimensions
unknown
Extent
1 online resource (xvii, 302 pages)
File format
unknown
Form of item
online
Isbn
9780691214702
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
22573/ctv10wz5f1
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)1162817285

Library Locations

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      5998 Alcalá Park, San Diego, CA, 92110-2492, US
      32.771354 -117.193327
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