Coverart for item
The Resource Managing sickle cell disease in low-income families, Shirley A. Hill

Managing sickle cell disease in low-income families, Shirley A. Hill

Label
Managing sickle cell disease in low-income families
Title
Managing sickle cell disease in low-income families
Statement of responsibility
Shirley A. Hill
Creator
Author
Subject
Genre
Language
eng
Summary
  • As many as 80,000 African Americans have sickle disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with sickle cell trait or one of the sickle cell diseases. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A
  • Hill examines how low-income, African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care
  • The thirty-two mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate in, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women often encounter institutional roadblocks when seeking services and medical information. Still, they overcome these obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks
  • Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women react, redefine, or modify the objective scientific facts about SCD. She also reveals that within the cultural context of the African American community the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights
  • While to those outside this community, having children in spite of a high risk of passing on SCD may seem disturbing, this study acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity
  • Through in-depth interviews, Hill shows inventive women who find alternatives to traditional methods of caring for their children to successfully reduce their children's SCD symptoms and the strain of fitting in with their peers. A comprehensive account of SCD and its influence on daily and long-term decision-making emerge from Hill's interweaving of the women's voices and her own interpretive analysis
Member of
Cataloging source
N$T
http://library.link/vocab/creatorDate
1947-
http://library.link/vocab/creatorName
Hill, Shirley A.
Index
index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
Series statement
Health, society, and policy
http://library.link/vocab/subjectName
  • Sickle cell anemia in children
  • Sickle cell anemia in children
  • Sickle cell anemia in children
  • Health and race
  • Sickle cell anemia in children
  • HEALTH & FITNESS
  • HEALTH & FITNESS
  • Health and race
  • Sickle cell anemia in children
  • Sickle cell anemia in children
  • United States
  • Anemia, Sickle Cell
  • Caregivers
  • Family
  • Poverty
  • Social Support
  • United States
Label
Managing sickle cell disease in low-income families, Shirley A. Hill
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references (pages 199-221) and indexes
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
1. Introduction -- 2. Sickle Cell Disease -- 3. The Mothers and Their Families -- 4. Diagnosing Sickle Cell Disease -- 5. Reproductive Decision Making -- 6. Caregiving for Children with SCD -- 7. Mediators of Caregiving Demands -- 8. Finding Social Support -- 9. Coping -- 10. Reconstructing SCD
Control code
ocn639014042
Dimensions
unknown
Extent
1 online resource (x, 225 pages)
File format
unknown
Form of item
online
Isbn
9781566391887
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
  • 22573/ctt1441zxc
  • 0618afcd-2d97-42e1-b0cf-f6627aa98f6c
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)639014042
Label
Managing sickle cell disease in low-income families, Shirley A. Hill
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references (pages 199-221) and indexes
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
1. Introduction -- 2. Sickle Cell Disease -- 3. The Mothers and Their Families -- 4. Diagnosing Sickle Cell Disease -- 5. Reproductive Decision Making -- 6. Caregiving for Children with SCD -- 7. Mediators of Caregiving Demands -- 8. Finding Social Support -- 9. Coping -- 10. Reconstructing SCD
Control code
ocn639014042
Dimensions
unknown
Extent
1 online resource (x, 225 pages)
File format
unknown
Form of item
online
Isbn
9781566391887
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
  • 22573/ctt1441zxc
  • 0618afcd-2d97-42e1-b0cf-f6627aa98f6c
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)639014042

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      32.771354 -117.193327
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