Coverart for item
The Resource Testing baby : the transformation of newborn screening, parenting, and policy making, Rachel Grob

Testing baby : the transformation of newborn screening, parenting, and policy making, Rachel Grob

Label
Testing baby : the transformation of newborn screening, parenting, and policy making
Title
Testing baby
Title remainder
the transformation of newborn screening, parenting, and policy making
Statement of responsibility
Rachel Grob
Creator
Subject
Genre
Language
eng
Summary
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives
Member of
Action
digitized
Cataloging source
E7B
http://library.link/vocab/creatorDate
1966-
http://library.link/vocab/creatorName
Grob, Rachel
Index
index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
Series statement
Critical issues in health and medicine
http://library.link/vocab/subjectName
  • Umschulungswerkstätten für Siedler und Auswanderer
  • Newborn infants
  • Medical screening
  • MEDICAL
  • Medical screening
  • Newborn infants
  • Neugeborenenkrankheit
  • Reihenuntersuchung
  • Gesundheitspolitik
  • Eltern
  • Neonatal Screening
  • Infant, Newborn
  • Parents
  • Health Policy
Label
Testing baby : the transformation of newborn screening, parenting, and policy making, Rachel Grob
Instantiates
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood?
Control code
ocn785782340
Dimensions
unknown
Extent
1 online resource (xi, 272 pages)
Form of item
online
Isbn
9780813552026
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
22573/ctt4jv8cm
Reproduction note
Electronic reproduction.
Specific material designation
remote
System control number
(OCoLC)785782340
System details
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.
Label
Testing baby : the transformation of newborn screening, parenting, and policy making, Rachel Grob
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood?
Control code
ocn785782340
Dimensions
unknown
Extent
1 online resource (xi, 272 pages)
Form of item
online
Isbn
9780813552026
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
JSTOR
http://library.link/vocab/ext/overdrive/overdriveId
22573/ctt4jv8cm
Reproduction note
Electronic reproduction.
Specific material designation
remote
System control number
(OCoLC)785782340
System details
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.

Library Locations

    • Copley LibraryBorrow it
      5998 Alcalá Park, San Diego, CA, 92110-2492, US
      32.771354 -117.193327
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